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“The Christmas appeal inspired me to carry on fundraising”
Latest news, posted 26 February 2025
After playing a key role in the Macular Society’s Christmas appeal in 2024, ten-year-old Archie is stepping up his fundraising efforts as he plans a new challenge to raise vital funds for research.
“I'm still really scared of losing what sight I have left”
Latest news, posted 28 February 2025
Kate’s first experience of her rare macular condition happened 16 years ago, when she suffered a bleed in her right eye. It left her with peripheral vision only, though a timely injection halted any further sight loss.
Gene therapy trial improves sight in blind toddlers
Latest news, posted 4 March 2025
Four toddlers born with a severe form of childhood blindness have experienced “life-changing improvements” to their sight after participating in an experimental gene therapy trial.
Professor Andrew Lotery answers your questions
Latest news, posted 5 March 2025
Professor Andrew Lotery discusses the latest approved treatment for wet age-related macular degeneration (AMD), Lytenava and answers your frequently asked questions on treatments and research.
“I used to cry in the shower – there was so much anger”
Latest news, posted 13 March 2025
Counselling has been a “lifechanging” experience for Trevor, who hit his lowest point when macular disease began to impact both of his eyes.
How to make the most out of your optician appointments
Latest news, posted 26 March 2025
From what to ask your opticians, to a guide on what to take with you to an appointment, the latest episode of the My Macular and Me podcast looks at how you can make the most out of your optician appointments.
How could the proposed changes to benefits affect you?
Latest news, posted 28 March 2025
The Government has launched a public consultation on major changes to health and disability benefits, as well as employment support.
Friends take on epic mountain challenge to beat macular disease
Latest news, posted 1 April 2025
From Yorkshire to Tanzania, two friends who spend their working lives treating people with macular disease are taking on a series of epic mountain climbs in 2025, raising funds to find a cure.
Parliament to explore impact of independent sector on NHS eye care
Latest news, posted 2 April 2025
A new Early Day Motion (EDM) is set to be introduced in Parliament to examine how independent sector providers are affecting NHS eye care, particularly for people with conditions such as age-related macular degeneration (AMD).
“I will not be identified by my macular disease”
Latest news, posted 25 April 2025
From experiencing “sheer hell” in the aftermath of his diagnosis to getting his life back on track, Duncan knows all too well how important a positive mindset has been for adapting to a life with macular disease.