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Syfovre FAQs and next steps for dry AMD and geographic atrophy treatment

Latest news, posted 30 January 2025

The UK’s Medicines and Healthcare products Regulatory Agency (MHRA) decision to reject the first potential treatment for geographic atrophy (GA), or late-stage age-related macular degeneration (AMD) is undoubtedly a disappointing one for those living with the condition. But, what does the decision mean? We answer your questions.

“The Christmas appeal inspired me to carry on fundraising”

Latest news, posted 26 February 2025

After playing a key role in the Macular Society’s Christmas appeal in 2024, ten-year-old Archie is stepping up his fundraising efforts as he plans a new challenge to raise vital funds for research.

“I'm still really scared of losing what sight I have left”

Latest news, posted 28 February 2025

Kate’s first experience of her rare macular condition happened 16 years ago, when she suffered a bleed in her right eye. It left her with peripheral vision only, though a timely injection halted any further sight loss.

Gene therapy trial improves sight in blind toddlers

Latest news, posted 4 March 2025

Four toddlers born with a severe form of childhood blindness have experienced “life-changing improvements” to their sight after participating in an experimental gene therapy trial. 

Professor Andrew Lotery answers your questions

Latest news, posted 5 March 2025

Professor Andrew Lotery discusses the latest approved treatment for wet age-related macular degeneration (AMD), Lytenava and answers your frequently asked questions on treatments and research.

GPs urged to report unfit drivers

Latest news, posted 18 December 2015

GPs have been urged to tell the DVLA about any patients who continue to drive when they are medically unfit to do so.

Proposed ban on pavement parking rejected

Latest news, posted 18 December 2015

A proposed law to ban pavement parking across England and Wales has been rejected by the Government.Transport Minister Mr Goodwill, the MP for Scarborough and Whitby, said the Government could make no decision in favour of implementing a national ban wit…

Christmas Appeal launches

Latest news, posted 18 December 2015

Our Christmas Appeal, which is now in its fifth year, was officially launched last month.

New stem cell trial offers potential cure for AMD

Latest news, posted 18 December 2015

Surgeons in London have carried out a pioneering human embryonic stem cell operation in an ongoing trial to find a cure for age-related macular degeneration.This first operation is a major milestone in the London Project to Cure Blindness, which was esta…

Health Talk seeks genomic research participants

Latest news, posted 1 February 2016

Health Talk, which provides free information about health issues by sharing people's real-life experiences, is looking to talk to people who have been invited to take part in the Genome 100,000 Project.